The Battle Just to Get Dressed
This morning hit different. My body felt like it had been fighting a war all night. Allergies were full-blown — voice raspy, post-nasal drip nonstop, and my muscles were locked up like concrete. I sat on the edge of my bed just trying to will my body to cooperate. Getting dressed shouldn’t be this hard….
What It’s Really Like to Have Medical Students Shadow Your Life with MS
Yesterday, Pat and Milan came over for their monthly check-in. They’re med students in a special program that pairs future doctors with MS patients so they can actually see what it’s like to live with this disease—not just read about it in a textbook. My doctor, who runs the Neuroscience Institute at Hackensack University Medical…
MS Can’t Stop Me: How Coloring and Gratitude Became My Therapy
Let’s be real—MS can throw some serious curveballs. One day, you feel fine. The next? Your body has a mind of its own. It’s frustrating, exhausting, and some days, just straight-up overwhelming. But here’s what I know for sure: MS doesn’t get to steal our joy. A while back, I discovered something that changed everything…
A Happy Heart is a Continual Feast – But You Have to Feed It
Let’s talk about joy. Not the kind that just magically appears when everything is going right—because let’s be real, how often does that happen? I mean the kind of joy that you choose. The kind that you build, nurture, and hold onto, even when life throws curveballs. This verse from Proverbs 15:15 hit me hard:…
Losing Weight with MS: The Struggle, the Reality, and the Plan Forward
Losing weight with multiple sclerosis (MS) is no easy feat—especially when mobility challenges limit physical activity. I’ve been on this journey before. A couple of years ago, I was at my peak in terms of physical activity. I had a robotic leg brace, but at eight pounds, it was more of a hindrance than a…
VIDEO: One Crutch Training with Cadense Sneakers
Hey there, friends! I want to share an exciting update on my journey with multiple sclerosis (MS). As many of you know, walking has been a significant challenge for me. Recently, I’ve been training to qualify for a new MS medication that requires me to walk 100 meters using only one assistive device. This milestone…