This morning hit different. My body felt like it had been fighting a war all night. Allergies were full-blown — voice raspy, post-nasal drip nonstop, and my muscles were locked up like concrete. I sat on the edge of my bed just trying to will my body to cooperate. Getting dressed shouldn’t be this hard….
Yesterday, Pat and Milan came over for their monthly check-in. They’re med students in a special program that pairs future doctors with MS patients so they can actually see what it’s like to live with this disease—not just read about it in a textbook. My doctor, who runs the Neuroscience Institute at Hackensack University Medical…
Losing weight with multiple sclerosis (MS) is no easy feat—especially when mobility challenges limit physical activity. I’ve been on this journey before. A couple of years ago, I was at my peak in terms of physical activity. I had a robotic leg brace, but at eight pounds, it was more of a hindrance than a…
How do you cope with the challenges of brain fog and the frustration of daily tasks when living with chronic illness? Let’s be honest. Living with MS isn’t just about the physical pain or the fatigue—it’s the little things that add up and drive you crazy. The brain fog. The moments where you can’t find…
Last night, I had the honor of speaking to my son’s Webelos troop at Immaculate Heart of Mary Church in Wayne, New Jersey. The evening was an incredible opportunity to share my journey with multiple sclerosis and discuss living with a disability. As the boys settled in, I started by explaining what MS is and…
Living with multiple sclerosis (MS) means navigating a life full of routines and adjustments to stay ahead of disease progression. For me, a vital part of that journey is my biannual Ocrevus infusion, which has been a game-changer in keeping my MS stable and giving me the ability to continue living life on my terms….